We are two days away from London turning one and only 5 days away from his birthday party. We’ve got a small intimate thing planned for London’s actual birthday, but we are going WAY over the top for his birthday party. I’ve got this incredible feeling that little man is going to be one. When he was born the odds were not in his favor. Had things not gone exactly as they did we wouldn’t be celebrating his first birthday. It’s got a bit more of an emotion behind it to us.
Since we live in the country we’ve sent special directions to our guests and we wanted to do something that they couldn’t miss so they would know just when to turn down our dirt road. The hubs and I decided on making a giant sign to put in between the big trees at the start of our drive. We decided that we have watched enough HGTV and pinned enough stuff on Pinterest…we’ve got this.
We already had some plywood that we had been using on another project so we just used the left over for London’s sign. It only needed a few pieces trimmed off so naturally I let my handsome husband do that job. I’m not allowed to play with power tools, lol. After the sign was cut to size and sanded we primed then painted it a bright white. Luckily it doesn’t need to be perfect so the fact that the paint wasn’t exactly cooperating was A-OK with us.
The next step was to cut some trim pieces for the sign. Obviously my other half did that. He has a background in the successful usage of power tools. Plus I think he looks pretty darn good looking while doing it.
I only get the most basic work possible. Meaning the painting is practically the only thing I could be trusted to do. I’m not the craftiest girl around. Oh on a side note we found the blue paint we were needing on sale and already mixed…SCORE!
We then nailed the trim to the sign and proceeded to figure out who was going to be responsible for painting the actual wording. After my inner artist came out to paint the arrow we decided that it’d probably be best for my hubby to do it. He’s got a much more steady hand than I do.
What I couldn’t believe was how quickly we got this done. It took just under two hours and that including paint drying time. The weather was gorgeous while we were working on this project so we had a fantastic time spending it outside enjoying the sunshine. Plus the end result will be the bees knees at London’s birthday bash!
In addition to the sign making we’ve been working on little projects here and there. This is a major perk of hosting a party at home. We’ve already gotten quite a bit done, but we still have last minute stuff to work on. I am so excited to celebrate on Sunday. Not only do we have a big party planned but we have two cakes ordered. One for London’s real birthday on Thursday and one for his party on Sunday. Any opportunity to have cake in our house is sure to be a success! Hopefully Wee Man will jump on board the sweet tooth train with us.
My new favorite topic of discussion has got to be on the subject matter of walking. “Is your son walking yet? My granddaughter has been walking since she was 6 months old. That’s weird your almost one year old son isn’t walking yet. Don’t worry he will figure it out eventually.”
WOW, that’s fascinating! Please tell me more about my inadequate child. While I’m impressed that her grandchild is clocking some serious mileage in the walking department it aggravates me to no end how people choose to compare babies. Why does everyone have to be so dang competitive? It’s raising happy, healthy children not training for the next olympics.
Yep…London is almost one and doesn’t stand independently or walk without holding onto something, but he is pretty spectacular in my eyes. He can already say multiple words, eats like a true fat kid, selects his own clothes each day, socializes with everyone he comes into contact with and he’s got one of the happiest dispositions I’ve ever encountered. Pssh I don’t care if he walks yet. Want to know why? Because I know he eventually will. My younger brother has a theory that London secretly walks already. “That kid gets from point A to point B way too fast to be crawling!”
When he said this it got me thinking….what if London has this whole walking/be carried thing figured out. Perhaps Wee Man has discovered that he will be walking for the rest of his life. Maybe he has decided to get carried as long as he can. So he can’t walk but he is obviously a genius when it comes to strategy.
I wish we lived in the perfect world where nobody would ever compare a child to another ever again. Unfortunately it’s not going to happen. It doesn’t matter to me that he’s not walking, it matters to me that someone thinks it’s ok to peg babies against other babies. I think it’s time for people to stop worrying so much about what my child is doing or better yet isn’t doing. He’ll figure things out in time, but for the time being don’t worry he’s got this!
London has been making giant strides towards taking those first steps. He couch cruises, walks with his push toy and climbs everything he possibly can. For now I’m fine with carrying my handsome man everywhere. After all he is the best arm candy EVER!
Oh my stars! London is a mere week away from being a 1 year old. I’m so excited to celebrate London’s first year of life with our family and friends. After kicking off this month in the hospital it’s nice to be home and preparing for such a fun event. In honor of being only a few days away from the big shindig I figured I would go ahead and share his cake smash photos with y’all.
London’s smash cake was done by Cakes by Daniela and it turned out incredible. It was easy on the eyes and absolutely delicious!!!!
Wee man did not like getting dirty at all. He never actually cried, but he made it very clear he was not into this whole smashing thing, lol.
After his “lip” session he was back at it enjoying himself. He did, however, try to avoid touching anymore of the cake than he had too. Silly kid!
Your wide and pretty eyes
Your chubby little nose
You charming and sweet smile
Your curly-burly toes
Your small and soft hands
Your itsy-bitsy feet
Give me all the happiness
And make my life complete
The Bartel family is still at the hospital. Lots has happened since our last post though. Early yesterday evening London’s IV blew his vein. The nurses removed it promptly and after both our pediatrician and genetics team deliberated they decided to leave it out since little man was drinking formula on his own. So not only are we done with that dang croup tent, but now we no longer have that IV chord to worry about. I swear that thing gets tangled in everything. London is enjoying his freedom and loving not having to live his life confined by how far the IV can stretch.
We thought we were going to be able to go home earlier today but as you can tell we obviously did not. Wee man is still having issues with his rotavirus…aka his diapers are runny….YUCK! Since this is not only an MCADD no no to have diarrhea but it also causes dehydration they want to monitor him for a while longer to make sure he isn’t going to need the IV again. He’s been so good though. Even with all this poopy business his blood sugars have remained stable at around 118 give or take a few digits. He also ate his first container of actual baby food since we came in. London has been refusing baby food this whole stay. If it isn’t a bottle he doesn’t want it. Well today he ate an entire container of yogurt and has been snacking on a roll and even some of mommy’s Sabritones, lol.
Even with all these huge improvements being made London was still getting cabin fever and starting to get fussy again. Colton ran down to the gift shop to grab me something to drink since the cafeteria was closed at the time. He brought me my beloved Diet Dr. Pepper and brought London a massive stuffed giraffe. Anyone who knows our kid know how much he loves giraffes. I blame Sophie the teether for that! He got the medium size giraffe when he had his first lab work done for MCADD, then his Aunt Rikki brought the smaller one and now his Daddy has completed the collection by adding the BIG one. The moment London saw his newest addition he smiled from ear to ear and lunged at it.
Daddy said, “I figured since he already had the other two he needed this one. Plus he has earned it with this stay.” I couldn’t agree more. London has enjoyed playing with his new buddy, snuggling, throwing him into the side of his crib and staring longingly into his eyes.
This hospital stay may be much longer than we’d like and London may be thinking we’ve permanently moved but at least we are all trying to enjoy our time here as much as we can. This fact may not ring true for everyone, but for London giraffes make everything better!
We are feeling like we should just put a welcome mat in front of our hospital room door. It feels like we’ve been here for weeks even though it’s only been a few days. I wanted to share a brief update on how London is progressing.
Can you spot what’s missing? The croup tent is gone. HALLELUJAH! The tent itself is already a challenge to keep an almost toddler in. Then factor in his continuous IV and trying to keep it untangled and you’ve got a full time job right there on your hands. The noise from that darn thing was so loud. We have gotten used to it, but now with it being gone it is soooooo relaxing. I’m not sure how a hospital stay can be relaxing but I’m pretty sure this is the closest it can get, lol. London immediately enjoyed a nap in his now normal crib.
In addition to kicking the croup tent out of our room we were told we could begin weaning him off of his D-10 glucose drip. 5 full bags have been drained by our MCADD warrior. We have now gone from 60ml per hour to a mere 20ml per hour. We got this!
The croup tent and the weaning process were already news we were beyond excited to receive. Then our pediatrician said that after 6 hours of weaning they were going to completely stop his drip. At that point if London is able to eat well, keep it down and still keep his blood sugars at a stable level then we can break free. The thought that we are within 24 hours of being back in the comfort of our own home is heaven sent. Although we could possibly be discharged this evening, it’s looking like it will be tomorrow morning/early afternoon. The end of London’s first hospitalization is in sight!!!
A big plus is that not only were the hubs and I able to both get some rest last night, but we both managed to find the time to clean up. Colton took a long shower while I snuggled wee man and then vice versa. It may be the fact that we no longer have a stench lingering or all the good news, heck it may be a combination of all of the above, but we are feeling pretty fantastic given the circumstances.
London is showing MCADD whose boss. He has been a trooper with not pulling at his IV. Wee man has even begun untangling it when he notices he’s getting wrapped up in it. He’s a genius! Right now he is farting and laughing after each barking spider he has. Yep, he’s all boy!
It’s been an experience for sure. Our first MCADD related stay is almost in the books. We just keep saying that at least we’ve reached our insurance deductible, lol. This hospitalization had thrown more at us than we were prepared for. With urology surgery approaching for London in May we are also looking at this whole thing as a way to prepare us for that whole shabang. Knowing that not every MCADD hospitalization will be accompanied by croup, rotavirus and an ear infection have us feeling like we could totally handle this. We were so fortunate to not have any hospitalizations while London was younger. It is inevitable that it will happen again. It will happen often throughout his life. London better just get used to hospitals being his home away from home. If he get sick, he’s right back here. if he refuses to eat, he’s hospitalized. If he has an infection, it’s to the ER we shall go. At times I get so jealous of all the other parents being able to just stay home and let their kiddos wait it out and deal with things at home. Then it hits me….London is a miracle. He had the odds stacked against him at birth, yet he survived. He got a prompt diagnosis for his condition, lots of families aren’t as lucky. He makes the best of any situation, this is teaching me that life is beautifully fun no matter where you are or what you are dealing with. Our little MCADDer is such an inspiration to us. We only thought we were strong. He has shown us what true strength looks like.